Comments on: Sjogren’s Syndrome and Celiac Disease http://pattiesj2homebiz.wordpress.com/2008/05/03/sjogrens-syndrome-and-celiac-disease/ Just another WordPress.com weblog Wed, 03 Jun 2009 21:42:47 +0000 http://wordpress.com/ hourly 1 By: Jackie Lee http://pattiesj2homebiz.wordpress.com/2008/05/03/sjogrens-syndrome-and-celiac-disease/#comment-59 Jackie Lee Sun, 31 May 2009 03:42:56 +0000 http://pattiesj2homebiz.wordpress.com/?p=17#comment-59 I was diagnosed with sojgrens Nov 2008, Have been on Imuren 50mg since then plus low doses of prednosone, would love to hear from anyone about how long the Neuropathy which l have very bad in my feet and lower legs.plus other areas of my body, the feet issue is the worst it makes me very of balance, it is better and l have been able to return to work,be it only part-time, l realise every one is different with this disease, but would love some feed back please. thanks Jackie Lee I was diagnosed with sojgrens Nov 2008, Have been on Imuren 50mg since then plus low doses of prednosone, would love to hear from anyone about how long the Neuropathy which l have very bad in my feet and lower legs.plus other areas of my body, the feet issue is the worst it makes me very of balance, it is better and l have been able to return to work,be it only part-time, l realise every one is different with this disease, but would love some feed back please. thanks Jackie Lee

]]> By: chojny997 http://pattiesj2homebiz.wordpress.com/2008/05/03/sjogrens-syndrome-and-celiac-disease/#comment-58 chojny997 Sun, 17 May 2009 12:44:57 +0000 http://pattiesj2homebiz.wordpress.com/?p=17#comment-58 Hi TMR I have 28 years. I have celiakie and Sjogren syndrome Celiakie diagnosed in December 2008 and since then I am on the gluten-free diet. My visceral disease antibodies not yet dropped to zero. Here is a description of the biopsy: A section of the small intestine mucosa with a completely smooth surface, without outlines of villi and intestinal crypts. The stroma shows an intense chronic plasma cell inflammation. Intraepithelial lymphocytes >40 IEL/100 EC. The morphological picture corresponds to villous atrophy IIIc grade acc. to Marsh classification. In February I was in the hospital or the ward reumatological, which stated Sjogren syndrome. RF is normal C3 is normal C4 is normal ANA is negative Anca C is normal p anca is normal Diagnosis made by biopsy of salivary glands. Reumatologist said that this is a complication untreated celiac that this is a secondary Sjogren syndrome and that this is like a disease. Teasing me a dry mouth and eyes. I have dry skin on the face and hands, the rest of the skin is well moistened. Write me when you resolved the symptoms of Sjogren. Do you immediately after the introduction of gluten-free diet? Do you only after the complete disappearance of celiac? When you take not medicines from reumatologist, I have taken steroids, but they exacerbated my osteoporosis. I would like to know when the place for me to improve. My e-mail: chojny997@wp.pl Hi TMR
I have 28 years.
I have celiakie and Sjogren syndrome
Celiakie diagnosed in December 2008 and since then I am on the gluten-free diet.
My visceral disease antibodies not yet dropped to zero.
Here is a description of the biopsy:
A section of the small intestine mucosa with a completely smooth surface, without outlines of villi and intestinal crypts.
The stroma shows an intense chronic plasma cell inflammation.
Intraepithelial lymphocytes >40 IEL/100 EC.
The morphological picture corresponds to villous atrophy IIIc grade acc. to Marsh classification.
In February I was in the hospital or the ward reumatological, which stated Sjogren syndrome.
RF is normal
C3 is normal
C4 is normal
ANA is negative
Anca C is normal
p anca is normal
Diagnosis made by biopsy of salivary glands.
Reumatologist said that this is a complication untreated celiac that this is a secondary Sjogren syndrome and that this is like a disease.
Teasing me a dry mouth and eyes. I have dry skin on the face and hands, the rest of the skin is well moistened.
Write me when you resolved the symptoms of Sjogren.
Do you immediately after the introduction of gluten-free diet?
Do you only after the complete disappearance of celiac?
When you take not medicines from reumatologist, I have taken steroids, but they exacerbated my osteoporosis.
I would like to know when the place for me to improve.
My e-mail: chojny997@wp.pl

]]> By: chojny997 http://pattiesj2homebiz.wordpress.com/2008/05/03/sjogrens-syndrome-and-celiac-disease/#comment-51 chojny997 Tue, 24 Mar 2009 10:00:13 +0000 http://pattiesj2homebiz.wordpress.com/?p=17#comment-51 I come from Poland Coeliac and sjogren :( I come from Poland
Coeliac and sjogren :(

]]> By: Pattie Ramsey http://pattiesj2homebiz.wordpress.com/2008/05/03/sjogrens-syndrome-and-celiac-disease/#comment-49 Pattie Ramsey Fri, 20 Mar 2009 22:08:58 +0000 http://pattiesj2homebiz.wordpress.com/?p=17#comment-49 I'm so glad that this information was useful in your research about Sojgren's. I really want people to get through the symptoms as easily as possible. No one truly knows what these symptoms are like unless you live with them daily or when flare ups occur talking with others really helps and we can learn together on what works and what doesn't. I haven't checked into this blog in a while I'm glad I did. My main purpose was to reach out to others and help them realize what they can do that many doctors won't tell them. Those who are taking the oils are doing the right thing. Staying away from gluten is important too. It may not solve all the symptoms or heal the disease but it is the right steps into having a normal life or as close to normal. Please, if anyone would like to call me for support here is my phone number 931-657-1993 I’m so glad that this information was useful in your research about Sojgren’s. I really want people to get through the symptoms as easily as possible. No one truly knows what these symptoms are like unless you live with them daily or when flare ups occur talking with others really helps and we can learn together on what works and what doesn’t.

I haven’t checked into this blog in a while I’m glad I did. My main purpose was to reach out to others and help them realize what they can do that many doctors won’t tell them.

Those who are taking the oils are doing the right thing. Staying away from gluten is important too. It may not solve all the symptoms or heal the disease but it is the right steps into having a normal life or as close to normal.

Please, if anyone would like to call me for support here is my phone number 931-657-1993

]]> By: R James http://pattiesj2homebiz.wordpress.com/2008/05/03/sjogrens-syndrome-and-celiac-disease/#comment-48 R James Fri, 06 Mar 2009 16:48:33 +0000 http://pattiesj2homebiz.wordpress.com/?p=17#comment-48 Very interesting. I have sjogrens syndrome and now my daughter is being tested for ciliac disease. Both have some similer ailments. Very interesting. I have sjogrens syndrome and now my daughter is being tested for ciliac disease. Both have some similer ailments.

]]> By: joi http://pattiesj2homebiz.wordpress.com/2008/05/03/sjogrens-syndrome-and-celiac-disease/#comment-47 joi Tue, 13 Jan 2009 21:52:49 +0000 http://pattiesj2homebiz.wordpress.com/?p=17#comment-47 Pattie, Thanks for your information. This is exactly what I have been searching for. My mother was diagnosed with primary sjogrens at the age of 50. Twenty-one years later she is still alive but has severe stomach problems and papillary thyroid cancer that was diagnosed too late. It has gone to her lungs. When I turned 50 last year, I got it too. I have done a lot of research and found the sjogrens/gluten link. I started the diet right away. I have been on it for a year now although I have knowingly eaten wheat twice and found that each time I experienced pain in my parotid glands and other salivary glands deep in my mouth. Luckily, I have no fatigue ( I teach Phys. Ed. and run about 20 miles a week). I take fish oil, primrose oil, green tea supplements (as well as drink 5 cups a day). Probiotics too and Aloe Vera pulp. I love talking to people with similar problems. As well meaning as the Dr.s are, I think that they discount the digestion/immune problems link. Pattie,
Thanks for your information. This is exactly what I have been searching for.

My mother was diagnosed with primary sjogrens at the age of 50. Twenty-one years later she is still alive but has severe stomach problems and papillary thyroid cancer that was diagnosed too late. It has gone to her lungs.

When I turned 50 last year, I got it too. I have done a lot of research and found the sjogrens/gluten link. I started the diet right away. I have been on it for a year now although I have knowingly eaten wheat twice and found that each time I experienced pain in my parotid glands and other salivary glands deep in my mouth.

Luckily, I have no fatigue ( I teach Phys. Ed. and run about 20 miles a week). I take fish oil, primrose oil, green tea supplements (as well as drink 5 cups a day). Probiotics too and Aloe Vera pulp.

I love talking to people with similar problems. As well meaning as the Dr.s are, I think that they discount the digestion/immune problems link.

]]> By: TmR http://pattiesj2homebiz.wordpress.com/2008/05/03/sjogrens-syndrome-and-celiac-disease/#comment-43 TmR Sat, 03 Jan 2009 23:46:50 +0000 http://pattiesj2homebiz.wordpress.com/?p=17#comment-43 My gosh Pattie-this could have been written by me! I too did a lot of research on both of these AI's after being diagnosed with Sjogren's (finally!!) and a sister with Celiac's and Sjogren's symptoms. As we all know people can be genitically predisposed to Celiac's. Doctor's would not believe me, in either case, until my symptoms got so bad I was practically hospitalized. Anyway, I have been off gluten for just over a year and am off the "Sjogren's" medications prescribed by a Rheumitologist as well. I rarely have debilitating symptoms now unless I eat out a bunch of times in a row. (Even with gluten free dishes there is not a lot of common knowledge on cross-contamination, so this can be a problem!) Just being off the drugs has been a blessing, still, and I know for sure that both diseases are connected in my case. Thank you for sharing and helping to confirm this for me and others! My gosh Pattie-this could have been written by me!

I too did a lot of research on both of these AI’s after being diagnosed with Sjogren’s (finally!!) and a sister with Celiac’s and Sjogren’s symptoms.

As we all know people can be genitically predisposed to Celiac’s. Doctor’s would not believe me, in either case, until my symptoms got so bad I was practically hospitalized. Anyway, I have been off gluten for just over a year and am off the “Sjogren’s” medications prescribed by a Rheumitologist as well.

I rarely have debilitating symptoms now unless I eat out a bunch of times in a row. (Even with gluten free dishes there is not a lot of common knowledge on cross-contamination, so this can be a problem!) Just being off the drugs has been a blessing, still, and I know for sure that both diseases are connected in my case.

Thank you for sharing and helping to confirm this for me and others!

]]> By:   Sjogren’s Syndrome and Celiac Disease by medTRIALS.info http://pattiesj2homebiz.wordpress.com/2008/05/03/sjogrens-syndrome-and-celiac-disease/#comment-4   Sjogren’s Syndrome and Celiac Disease by medTRIALS.info Sun, 04 May 2008 11:08:40 +0000 http://pattiesj2homebiz.wordpress.com/?p=17#comment-4 [...] post by pattiej2homebiz delivered by Medtrials and [...] [...] post by pattiej2homebiz delivered by Medtrials and [...]

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